Merry Christmas Eve/Michael Health Update

Merry Christmas Eve! Michael finished his Minecraft Lego advent calendar today. He really enjoyed discovering each new item as the month progressed.

Here is the finished display:

A little over three weeks ago, Michael had a manometry study to test the motility of his esophagus, in an ongoing effort to discover why he has trouble swallowing food. The results of the test were apparently normal, but they did make a note that there was “absence of contraction in the skeletal portion of the esophagus.”

Based on this finding, they have referred him to be assessed for possible neuromuscular disorders. Unfortunately, the first available appointment with that department isn’t until September 2026.

It is confusing to me why this is not considered a GI issue, but we are seeing the GI doc in January so hopefully can get a better explanation then. From some reading I have done, it may also explain his chronic constipation issues.

Thankfully, he is able to swallow as long as he has enough liquid to help get it down, so he is okay for now.