Catching Up – February 2024

My new decor.

A lot has happened the last few weeks, so I wanted to jot things down for myself to remember.

Michael started working his first job in mid-December, and he is currently working 12 hours per week. The job is at a laundry facility that supports the Fort Indiantown Gap. He is working with linens and towels. There have been a few challenges as he learns the job, but he is continuing to improve.

Also in mid-December, I started having swallowing issues again and went in early February to have an endoscopy with dilation. In the meantime, I also visited an allergist to discuss my problems eating eggs. Now that I have been diagnosed with diabetes, it would be helpful to be able to eat eggs. (I can eat them as an ingredient in baked goods, just not in their original form.) The allergist told me about a new medication, Dupixent, that treats EOE and said I might be a candidate for it. She is requesting my GI records to evaluate my case.

After my endoscopy, the GI doc said he did find increased eosinophils and prescribed a steroid called Budesonide. I can only get it in a capsule, however, and I am terrified to try to swallow it because I have gotten pills stuck before. It also can increase blood sugar, and I don’t have a way to check my sugar right now. My PCP said she could put me on a continuous glucose monitor if I needed it. I have decided to just wait until I meet with the allergist to discuss the Dupixent again before I choose whether to take the Budesonide. Another factor is that the GI doc didn’t answer my questions about the medication despite my sending multiple messages to his office, and the allergist is very thorough in explaining things.

In other news, I have been getting more involved at my new church. The women’s table group I was a part of last fall has started again, so I am enjoying that. I also attended my first Ash Wednesday service. It was quite moving, and I have joined a Lenten book study that the pastor is leading weekly over Zoom. We have just had one meeting so far, and there were eight of us including the pastor. I was very nervous to participate, but I did force myself to speak up one time during the session. I am hopeful that by preparing my thoughts ahead of time, I will be able to participate more during the rest of the sessions.

Another thing I am going to be doing at church is greeting one service a month. I met with the hospitality team leader and she showed me what was involved, and next Sunday will be my first time doing it. I am actually not nervous about interacting with people because it should be pretty straightforward. The only thing I am nervous about is whether the arthritis in my right hip will act up. It does bother me when I am standing during worship at church, but I think if I move around a bit while greeting, it will be okay.

In friend news, Renee had her third back surgery. The doctor replaced her remaining rod with two new curved rods and also put in something to help the vertebrae grow. I am seeing Kim weekly for lunch and a movie. Yesterday, she helped me hang the two puzzles in the picture above. I’m really happy with them.

I have also made two new friends at church – Suzanne and Jessyca. Suzanne and I have gotten together three times for dinner, and Jessyca is coming over tomorrow to do a puzzle. I have met some other people that I talk to at church as well. It feels good to be expanding my circle a bit!

I’ll wrap up here as that is quite a lot for one post!

Catching Up – October 2023

Wow, it’s hard to believe it has been over seven months since my last post! A lot has happened in that time.

  • Told my husband I wanted a divorce
  • Found a new home for our dog
  • Sold our house
  • Paid off our debts with the proceeds
  • Found an apartment for me and my son
  • Finalized the divorce
  • Went back to my maiden name
  • Found a new church

I am really happy in the new apartment, and I love the church I found. I have only been going for about six weeks, and I just attended a mixer for new people yesterday. It was a lot of fun. I am also part of a table group that meets every other Wednesday night, and later this month I am going to a three-week class called Intro to the Journey to learn more about the church.

I was recently diagnosed with diabetes, which has precipitated some huge changes in my life. I have had to change a lot about how I eat, including quitting Mountain Dew cold turkey. The combination of the new diet and the medication I am on seems to be helping, as I have a lot more energy now. I have been able to get a lot more done at work and even work some overtime again. I had been feeling discouraged about my energy levels for a while and assumed it was autistic burnout, but it seems like the way I had been feeling was actually a physical issue.

I have even started puzzling again. I am working on The World of the Bronte’s. It is the same style and size as The World of Jane Austen, which I did a while ago and framed. Once this one is done and framed, I’m going to hang them both on the wall above my TV. So far I have sorted the pieces, done the border, and worked on a few of the buildings.

Michael seems to like the new place as well. We finally have a good Employment Specialist, and he has two phone interviews this week. I’m really hoping they go well!

So, that’s the update for now.