Michael has been having some swallowing issues that I recently became aware of. He describes it as a pressure in his chest and a feeling of release after he drinks water. If he is unable to drink water right away, the pressure increases and become painful. I took him to his primary care office and they referred him to GI and gave him a medication to try in the meantime.
We had the GI appointment, and she wants him to continue using the medication and have a couple of tests – a barium swallow and an upper endoscopy. She said that it could be related to reflux, or it could be EOE like I have, or it might be a motility issue. She said the suggestion of achalasia made by the primary care office is unlikely because that is a more severe problem than he seems to be having.
Michael was more nervous about the swallow test than the scope because he has a lot of sensory sensitivities related to food textures. He had the barium swallow test Monday morning and it was unpleasant but he got through it. The first date they had available for an endoscopy was October 20th, so it will be a while until we get to that.
On another note, he has made some real progress with dental work. When he first transitioned to an adult dentist, he needed work done on several teeth and required sedation to handle it. Over the last few years, he has stepped down from twilight sedation to a combination of a pill that he would take an hour before the appointment along with nitrous oxide given during the appointment. This time, he just needed one tooth filled, so the dentist recommended trying it without taking the pill ahead of time. He said he would still give him nitrous if he needed it once they got started, but Michael did just fine without it. I’m so proud of him!
In So Many Words 